SOCIAL ENVIRONMENT FOR PEOPLE WITH AUTISM IN RUSSIA: EXPERT ASSESSMENT OF THE ACCESSIBILITY ISSUE

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Aim: To study expert opinion on the social system benefits for people with autism in Russia and barriers for their inclusive development and life. Methods: Two questionnaire-based surveys were performed in 67 regions of Russia. Pediatricians, neurologists, psychiatrists and other specialists (N = 400 in total) comprised the study base for the first survey. The second survey included psychologists and educators working with children with disabilities (N = 470). The results are presented as proportions. Results: Altogether, 42.4 % of psychologists and educators gave 1 of 5 points to the accessibility of the environment for people with autism. As many as 28.1 %, 22.7 % an 5.7 % provided 2, 3 and 4 points, respectively. Only 1.1 % of responders gave 5 points. Forty-eight per cent of responders indicated that the challenges of early intervention for children with autism and their families have not been addressed at all while 35.9 % responded that that they have been partially addressed. The most common answer (51.3 %) for the measures to support children with autism was "public and private rehabilitation centers for children with autism". Altogether, 17.4 % of the participants answered that there was no special support for children with autism. Conclusions: Professionals working with people with autism conclude that the availability of community resources for this vulnerable group is poor. At the same time, the experts acknowledge positive changes of the situation in Russia, the creation of new institutions to support children with autism and their families, as well as development of inclusive education. A comprehensive national program to improve social environment for people with autism is warranted.

About the authors

L. M. Mukharyamova

Kazan State Medical University

Email: edu-prorector@kazangmu.ru
доктор политических наук, профессор, зав. кафедрой истории, философии и социологии

Zh. V. Saveleva

Kazan (Volga region) Federal University

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